Building a community to support research and advocacy for GIGYF1- Related disorders
Rare diseases don’t come with a guidebook, they come with parents, caregivers, clinicians and researchers who coalesce behind a common purpose- ours is to drive awareness and fund research for the rare disease-GIGYF1-Related Syndrome.
Our journey has just started. There are less than 100 known cases of GIGYF1 related syndrome worldwide. But we can go miles with your support. Join us today- whether you are a caregiver or medical researcher, together we can make an impact towards research and cure for GIGYF1 related syndrome.
What we’re working towards
We envision a future where every individual impacted with GIGYF1 related syndrome has access to a clear diagnosis and treatment. Through our collective efforts to partner with the medical and scientific research community, we want to have pathways for clinical trials that will get us closer to understanding and treatment of GIGYF1 related syndrome.
